Hewlett, NY

Musella Foundation for Brain Tumor Research & Information, Inc.

EIN 13-3938057

Health & Wellness Disease & Chronic Illness Support Patients & families

Mission

The Musella Foundation is a 501(c)(3) nonprofit that empowers brain tumor patients and their families by providing emotional and financial support, patient navigation and educational resources, advocating for access to treatments, and funding targeted brain tumor research. Its guiding motto is: “Changing ‘No Hope’ to ‘No Problem.’”

IRS-recognized 501(c)(3) public charity Contributions are tax-deductible

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About Musella Foundation for Brain Tumor Research & Information, Inc.

The Musella Foundation for Brain Tumor Research & Information, Inc. (founded in 1998) operates a patient-facing web platform (virtualtrials.org) that provides clinical-trial information, patient navigation, educational guides, webinars and a Virtual Trial registry that collects treatment and outcome data. It combines direct patient support programs (including a copayment assistance program), an active research-grant program, and an expert medical advisory board to accelerate access to promising treatments and improve patient outcomes.

In recent years the Foundation has continued grantmaking and program activity: it has a multi-year record of research grants and direct patient assistance and has published annual highlights and grant awards for 2024–2026. The organization is an established, donor-facing charity with public 990 filings and an active online presence used by patients, clinicians and advocacy partners.

Notable achievements

Sustained direct patient assistance

Operates a Copayment Assistance Program and related patient-support services; the Foundation reports having distributed substantial direct patient assistance (more than $10 million reported as of October 1, 2022) and continues to operate copayment support for eligible brain tumor patients.

Virtual Trial clinical-trial registry and information hub

Originated one of the earliest online brain-tumor support forums and clinical-trial databases (beginning in the early 1990s) and maintains the Virtual Trial registry and an extensive library of treatment resources and webinars used by patients and clinicians.

Targeted research grantmaking (2025–2026)

Active research funder with a history of awarding many investigator and program grants (180+ research grants and multi‑million dollar support reported in recent years); recent 2025–2026 grant awards supported DIPG/DIPG collaborative efforts, preclinical projects and early-stage therapeutic development.

At a glance

Total assets: $2.1M
Annual revenue: $475K
Tax status: 501(c)(3)Public charity
EIN: 13-3938057
Location: Hewlett, NY
Website: virtualtrials.org
On Mahalo since: May 2026

Financial figures from the IRS Business Master File, the IRS’s registry of tax-exempt organizations.

Recognition

Maintains a medical advisory board and collaborators that include prominent neurosurgeons and brain-tumor researchers, reflecting clinical and academic engagement with the field.

Registered 501(c)(3) public charity (tax-exempt since 1998) with publicly available Form 990 filings and nonprofit listings on major nonprofit data platforms, demonstrating organizational transparency.

Recognized and cited by patient-advocacy networks and specialty publications for its long-standing role as an information and support resource for brain tumor patients; the Virtual Trials project has been highlighted in specialty media and advocacy channels.

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