Mahalo
Kingwood, TX

Myocarditis Foundation

EIN 20-2657059
Health & Wellness Disease & Chronic Illness Support Patients & families
Mission

To end suffering and sudden death from myocarditis by educating patients, families and clinicians, funding targeted research, and building support networks for those affected.

IRS-recognized 501(c)(3) public charity Contributions are tax-deductible

About Myocarditis Foundation

Founded in 2005 and based in Kingwood, Texas, the Myocarditis Foundation is the only U.S. nonprofit dedicated solely to myocarditis. The organization provides patient and family resources, clinician education, online support communities, and public awareness campaigns. The Foundation operates a competitive research fellowship grant program that provides seed funding to early-career investigators, runs webinars and educational initiatives for clinicians and patients, and publishes practical patient guides (for example, a “10 Critical Questions to Ask Your Doctor” PDF). In recent years the organization has continued awarding annual fellowship grants and expanding outreach to both medical and patient communities. The charity is an active, donor-facing 501(c)(3) with recent Form 990 filings and multi-year financial activity, ongoing fundraising and corporate grant support, and visible partnerships/recognition from major patient and heart-health organizations. It maintains an active website, social media/webinar program, and a research grant program that seeds translational and clinical myocarditis research.

Notable achievements

Annual Research Fellowship Program

Operates a competitive fellowship that provides seed funding (stipend level $40,000 for one year) to early-career investigators focused on myocarditis; recent fellowship awards were announced for 2022 and 2025, demonstrating ongoing investment in research and career development.

20-Year Milestone (2005–2025)

Celebrated two decades of focused advocacy, education, patient support and research funding in 2025, marking sustained growth of programs, resources, and scientific engagement since its founding in 2005.

Patient education and support resources

Developed and distributed practical patient- and clinician-focused materials (including a concise '10 Critical Questions' guide), runs webinars and online support groups, and curates survivor stories and clinical FAQs to improve awareness and care.

At a glance

Total assets
$2.6M
Annual revenue
$468K
Tax status
501(c)(3)Public charity
EIN
20-2657059
Location
Kingwood, TX
On Mahalo since
May 2026

Financial figures from the IRS Business Master File, the IRS’s registry of tax-exempt organizations.

Recognition

Registered 501(c)(3) public charity (EIN 20-2657059) with publicly available Form 990 filings and nonprofit listings, reflecting transparent financial reporting and donor-facing operations.
Listed or affiliated with major patient/heart organizations (site displays affiliation/recognition from groups such as the World Heart Federation, American Heart Association and NORD), indicating engagement with the broader cardiovascular and rare-disease communities.
Receives program support from industry partners (the Foundation’s website notes grant support from a pharmaceutical partner), enabling continued research grants and outreach activities.

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