Cure CMD
Cure CMD is a U.S. 501(c)(3) nonprofit (EIN 26-2640975) whose mission is to advance research toward treatments for the congenital muscular dystrophies (CMD) and to empower people living with CMD through community engagement, education, and support.
About Cure CMD
Cure CMD was founded in 2008 by parents of children with congenital muscular dystrophy and focuses on accelerating research, improving clinical care, and connecting families, clinicians, and researchers worldwide. The organization operates patient-facing programs and research infrastructure designed to make the CMD community clinical-trial ready.
Key organizational assets include the Congenital Muscle Disease International Registry (CMDIR), published consensus care and subtype-specific care guides (including pulmonary and cardiac guides), a mobile app and educational series for families and clinicians, and a research grant portfolio that has exceeded $4 million in cumulative funding. Recent activities (2023–2025) include relaunch of the CMDIR, funding multiple multi-year research projects (2022–2025), and winning a 2024 advocacy collaboration grant to expand policy and advocacy work.
Notable achievements
Relaunch of CMDIR
Delivered a modern, mobile-friendly international registry with multi-language support, subtype-customizable surveys, researcher opt-in data sharing and the capacity to run natural-history and retrospective studies to accelerate trial readiness.
Sustained multi-year research portfolio
Funded and co-funded multiple multi-year research projects (2022–2025) across CMD subtypes—covering biomarker development, CRISPR/ gene-targeting studies, high-throughput drug screening, and advanced disease modeling—bringing cumulative research support in excess of $4 million.
Advocacy grant and expanded policy work
Awarded a 2024 Muscular Dystrophy Association Advocacy Collaboration Grant to support expanded advocacy and legislator-engagement work, including advocate training and an advocacy event planned for 2025.
At a glance
- Total assets
- $509K
- Annual revenue
- $677K
- Tax status
- 501(c)(3)Public charity
- EIN
- 26-2640975
- Website
- www.curecmd.org
- On Mahalo since
- November 2025
Financial figures from the IRS Business Master File, the IRS’s registry of tax-exempt organizations.
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