Burnsville, MN

International Society of Amyloidosis

EIN 54-2153449

Health & Wellness Medical Research & Training Patients & families

Mission

To engage scientists, healthcare providers, patients and other stakeholders to provide education, raise awareness, and advance research and multidisciplinary clinical practice for all types of amyloidosis.

IRS-recognized 501(c)(3) public charity Contributions are tax-deductible

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About International Society of Amyloidosis

The International Society of Amyloidosis (ISA) is a professional, donor-facing nonprofit focused on advancing research, education, diagnosis and clinical care for all forms of amyloidosis. The Society brings together scientists, clinicians, patients and allied stakeholders to develop best practices, produce guidelines, and host scientific meetings. ISA operates globally but maintains a U.S. administrative presence and is organized as a 501(c)(3) nonprofit. The organization's recent activities include biennial symposia, publication of consensus nomenclature and clinical guidelines, position papers, and open-access educational materials for clinicians and patient communities.

Notable achievements

Biennial International Symposium on Amyloidosis

ISA organizes the leading international symposium for amyloidosis researchers and clinicians; the 2024 symposium was held in Rochester, MN and serves as a primary forum for presenting clinical trials, basic research advances, and consensus recommendations.

Updated nomenclature & clinical guidelines

ISA committees have produced and published updated amyloid nomenclature and expert clinical guidelines in recent years, including a 2024 nomenclature update and new management guidance for hereditary ATTR amyloidosis (2026), strengthening diagnostic and treatment standards worldwide.

Sustained educational resources and working groups

The Society maintains working groups, position papers, an open-access podcast series, and editorial contributions to the peer-reviewed journal 'Amyloid', providing ongoing training and guidance for clinicians and support for patient groups.

At a glance

Total assets: $2.5M
Annual revenue: $2.3M
Tax status: 501(c)(3)Public charity
EIN: 54-2153449
Location: Burnsville, MN
Website: www.isaamyloidosis.org
On Mahalo since: September 2026

Financial figures from the IRS Business Master File, the IRS’s registry of tax-exempt organizations.

Recognition

Affiliated with the peer‑reviewed journal 'Amyloid', which serves as the Society's official scientific publication.

Recognized as a U.S. 501(c)(3) tax‑exempt organization (EIN 54-2153449) and listed in nonprofit data services and charity databases.

Reputation as the principal global professional society for amyloidosis, with formal collaborations and events involving major clinical centers and international research groups.

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