San Francisco, CA

ADENOID CYSTIC CARCINOMA ORGANIZATION INTERNATIONAL

EIN 71-0916234

Health & Wellness Disease & Chronic Illness Support Patients & families

Mission

ACCOI is dedicated to ensuring those impacted by adenoid cystic carcinoma (ACC) are empowered by knowledge, strengthened by community, and supported throughout their journey.

IRS-recognized 501(c)(3) public charity Contributions are tax-deductible

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About ADENOID CYSTIC CARCINOMA ORGANIZATION INTERNATIONAL

Adenoid Cystic Carcinoma Organization International (ACCOI) is a volunteer-led, donor-facing 501(c)(3) nonprofit that provides education, patient and caregiver resources, peer support and curated clinical information for people affected by adenoid cystic carcinoma (ACC).

ACCOI maintains an active online community (including an established online support group and social media presence), a physicians list and disease-specific educational resources to help patients find experienced clinicians, understand treatment options and connect with researchers. The organization’s federal tax identification number (EIN 71-0916234) and recent Form 990 filings are publicly available and show it has been tax-exempt since 2003.

In recent years ACCOI has continued fundraising and grant/support activity to advance ACC research and patient services, including significant philanthropic support to complementary ACC research organizations and ongoing community outreach and events.

Notable achievements

Sustained global patient support network

Established and sustained an active online patient and caregiver community (several thousand members across forums and social channels) offering peer support, educational webinars and regular events for people living with ACC.

Documented financial growth and stewardship

Reported recent operational results and balance-sheet growth in public tax filings (including low operating expenses relative to contributions and accumulating net assets), demonstrating ongoing fundraising capacity to support patient services and research partnerships.

Major philanthropic support to ACC research

Provided significant grant/donation support to allied research organizations focused on ACC, including a six-figure gift to accelerate research and matched fundraising efforts in the mid-2020s.

At a glance

Total assets: $379K
Annual revenue: $20K
Tax status: 501(c)(3)Public charity
EIN: 71-0916234
Location: San Francisco, CA
Website: accoi.org
On Mahalo since: April 2026

Financial figures from the IRS Business Master File, the IRS’s registry of tax-exempt organizations.

Recognition

Recognized as a tax-exempt 501(c)(3) public charity (EIN 71-0916234), with a federal tax-exempt ruling dating to 2003.

Included in established rare-disease and cancer organization directories and referenced by clinical/research resources as a patient-focused support and information organization for ACC.

Acknowledged by the Adenoid Cystic Carcinoma Research Foundation and other research partners for philanthropic support and collaboration on physician listings and patient-facing resources.

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