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Frisco, TX

HYPOPARATHYROIDISM ASSOCIATION INC

EIN 82-0505424
Health & Wellness Disease & Chronic Illness Support Patients & families
Mission

To improve the lives of people impacted by hypoparathyroidism through education, support, research, and advocacy.

IRS-recognized 501(c)(3) public charity Contributions are tax-deductible
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About HYPOPARATHYROIDISM ASSOCIATION INC

HypoPARAthyroidism Association, Inc. is a U.S.-based 501(c)(3) patient advocacy organization focused on hypoparathyroidism and related disorders. The association maintains an active web presence offering educational resources, patient support, webinars, conferences, and a medical advisory board to connect patients with specialist care.

In recent years the organization has expanded its patient-focused activities, including an Externally-Led Patient-Focused Drug Development (EL-PFDD) engagement and a published Voice of the Patient report (2024). It also organizes international conferences and regular webinars and works with medical advisors and industry partners to support research, awareness, and treatment access.

Notable achievements

Voice of the Patient report (2024)

Published a formal 'Hypoparathyroidism — Voice of the Patient' report following patient-focused activities in 2024 to document patient experiences, symptoms, and daily impacts and to inform research and regulatory stakeholders.

International conference and ongoing educational events

Hosted the 2022 International HypoPARAthyroidism Conference and continues to run webinars, virtual events, and educational programs connecting patients and clinicians globally.

Established patient resources and medical advisory board

Maintains a resource library, patient-recommended doctor listings, downloadable educational guides, and a Medical Advisory Board of clinicians with expertise in hypoparathyroidism to support patient care and education.

At a glance

Total assets
$258K
Annual revenue
$458K
Tax status
501(c)(3)Public charity
EIN
82-0505424
Location
Frisco, TX
Website
hypopara.org
On Mahalo since
May 2026

Financial figures from the IRS Business Master File, the IRS’s registry of tax-exempt organizations.

Recognition

Listed in ProPublica's Nonprofit Explorer and filing public tax returns (EIN 82-0505424), confirming tax-exempt nonprofit status and public financial filings.
Referenced by NIH rare disease resources (GARD) as an organization patients can consult for hypoparathyroidism information and referral to experts.
Public partnerships and sponsorships with rare-disease biopharma and industry sponsors for conferences and educational programming.

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